Haemoglobinopathy Registry  
     
How to Participate

European Haemoglobinopathy Registry

Access to data entry is restricted to those doctors who have submitted a Registration Form and have been registered as a participant.

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Title:* First Name:* Last Name:*
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Number of patients with 'clinically significant' haemoglobinopathies (Sickle & Thalassaemia)

     
Number of patients by type of sickle cell disease:
SS SC SB° SB+ S-Other  
 
     
Number of patients by type of thalassaemia:
B Thalassaemia major B Thalassaemia Intermedia
 
     
Specialist Paediatric Clinic provided?
 
     
Specialist Adult Clinic provided?
 
     
Designated IP beds? Number of IP beds:  
 
     
Number of staff involved in haemoglobinopathy service (Whole Time Equivalent)
Medical Nursing Psychology Social Work Other  
 
     
     
 
   
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Last updated July 21, 2003 10:39.

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